Saturday, July 11, 2009

Colorado

Now that life is back to normal, I feel like I can post trivial things again...like vacation pictures. We spent a week in Breckenridge with my family. This was the view from our front door. If only all front door views were this breathtaking.

With eight people in one house, we cooked and cleaned a lot. Amanda has the clean-the-kitchen-right-after-dinner gene. I certainly do not.
Charlotte spent a LOT of time in her carrier. She loved it. Thankfully, the straps are adjustable, so we all took turns hauling her around Colorado.
This was taken in Vail. Incredibly adorable little town. There are fountains everywhere for kids to splash in. We naively thought rolling up Owen's pants would suffice. Ha ha. He was soaked by the time we were ready to leave.
Group shot. Right after we paid to go kayaking in Lake Dillon. Right before Will went back in to get a refund due to big black clouds sneaking closer across the sky.
Nearly every night we got in the hottub on our deck. Owen loved it. He renamed it "the warm tub." He also liked to provide nightly entertainment in there. Our favorite was "Shamwow."
On our last day we finally worked up the energy for a big hike. If you are ever near Breckenridge, you have to do the McCullough Gulge trail. Amazing. For much of the trail, you hike near a waterfall.
Then you cross a snow field.

And end up at a glacial lake on top of the mountain. Worth every painstaking step.

Friday, July 10, 2009

Home Again

We're home. Charlotte is napping in her room, and I'm reclining on the couch. So nice. She still has the clot in her left femoral artery, but she is doing well--happy to no longer be attached to beeping computers and subjected to rectal temperature checks and ultrasound goo. She has plenty of blood flow to her leg. Her diagnostic cath is scheduled for next month and if the clot has not dissolved on its own, they will possibly balloon it then. So we're cool with that. It's just good to be home.

Thursday, July 9, 2009

Optimism

I've been contemplating my optimism today. I tend to look at the bright side of things. When my husband pointed out to the midwife that our daughter didn't have any thumbs, and she looked at me with shock and apologized, my response was, "That's okay. God must have a plan for our daughter that doesn't include thumbs." And that's just how I see things. When the cardiologist told us eight months ago that the ultrasound may show an A/P window, but probably not...I focused on the "probably not." When they saw some scar tissue at her follow-up cardiology appointment four months ago and said that it would probably go away on its own...I focused on the "would probably go away."

Today has shaken me a little. We're still in the hospital. Charlotte has a clot in her femoral artery that is requiring some attention. It's not causing her any problems. However, they need both of her femoral arteries in good condition because "she's going to be a frequent flier." I hadn't expected that phrase. I understood that they were going to need to take a look at her aorta soon to make sure all is well, but I had no idea that she would require lots of repeat caths. I found myself holding her, unable to stop myself from crying.

When she was in the NICU a few days after her birth, I asked one of her cardiologists if the A/P surgery would take care of everything. He gave me a slightly condescending look and told me that this would be "like catching a tiger by the tail." He went on to explain that you might think you've got the tiger by the tail, but then it jerks away from you. I developed an immediate dislike for him due to that analogy. But he was right. I've never tried to catch a tiger, but I imagine that this is what it feels like.

But I still hold to my optimism. Not because I believe that the outcome of every situation will be what I want. But because it's what God calls me to be. He wants me to know true joy. He wants me to trust Him. He wants me to live in today, in the now, not worrying about tomorrow. You can't do any of those things if you're busy measuring the emptiness of the cup.

Wednesday, July 8, 2009

A Good Report

I'm sitting in the PICU now. Charlotte is beside me, sleeping peacefully. The cath went really well. She had a significant narrowing in her aorta, so they used the balloon. It isn't 100% open, but it's much, much better, and the cardiologist was very pleased. We will be staying overnight for monitoring, and then we'll have to come back in a month to take another look at the site of repair, making sure that the aorta is holding up well. But I'm feeling incredibly blessed. So many answered prayers today.

The Waiting Room

I'm sitting in the surgery waiting room. Charlotte went back about 45 minutes ago for her cardiac cath. She hadn't eaten since 2 a.m. but was happy, so that was a huge answer to prayer. They will keep us updated, but I can't imagine they've even started the cath yet, considering all of the pre-op work they have to do. Her doctor said they will only balloon open her aorta if she has a 50% blockage, otherwise they will just leave it alone. So I have no idea what to hope for...bigger blockage, get this thing taken care of, but more risk in the procedure? or less blockage and more watch and wait? So I'm just praying for God to take care of it. He's knows way better than I do.

Friday, June 26, 2009

Rock Band




Charlotte is working on her emo image.


Wednesday, June 24, 2009

Walk this Way

I can't say that I've always been a consciencious walker. Before I met Will, I was one of those free-minded walk any ole' way kind of girls. Then I met Will and learned that there are rules to walking.

1. ALWAYS walk on the right side of the sidewalk
2. Be aware of the path of the person beside you and do NOT cut them off by taking a crazy sharp turn or edging them off the sidewalk
3. Do not walk so quickly that you leave your loved one behind, feeling lonely and unimportant

After ten years together, these have now become second nature to me. So you can imagine my consternation when I crossed paths with a non-rule-followerer the other day. Last Wednesday morning we took Owen to the free kids' movie and then headed to the Fun Forest for some playtime afterwards. We're on the sidewalk at the park, me in the lead, and there are two ladies approaching from the other direction. They are walking side-by-side, taking up the whole sidewalk. I assume that one of them will drop back so that my family can pass. Neither is moving. They get closer. Still nothing. I'm starting to wonder if I am playing chicken with this lady. I will not jump into the pine needles so that she can continue hogging the sidewalk. So I stop. For a second, I think she contemplates just bowling me over and stepping on my face so that she doesn't have to swerve, but finally, she caves. Am I crazy? I know she doesn't know The Walking Rules, but doesn't this particular behavior fall in the common sense category? So I'm taking a poll...are you a sidewalk hog?